Jeff S.

When we first learned of Frances' condition, we were heartbroken. Our son Jonah suffers from epilepsy and autism and knowing the work involved with special needs kids, we know that everyday is one of hard work and stress. But when you toss in a rare disease like Frances', it's an entirely different ballgame, one I can't imagine. Kids with rare diseases are all of our children. It could happen to any one of us. And it's our job as a community to work towards finding a cure, not just those families dealing with the day-to-day stress of it. We all have an obligation to do what we can to help. That's why we donated. It's our duty to help. We hope that with a little help from anyone, we can find a little light at the end of this tunnel. We love you Frances!