EB Research Partnership
About
Founded in 2010 by a group of dedicated parents, Jill Vedder, and Eddie Vedder of Pearl Jam, EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit funding research aimed at finding a cure for Epidermolysis Bullosa (EB).Over the last decade EBRP has made remarkable strides, including helping to accelerate the first two EB treatments FDA approved in 2023.Children with EB are often called “Butterfly Children” because their skin is as fragile as the wings of a butterfly. With skin this fragile, everyday activities like eating, sleeping, walking and playing can become monumental tasks. Today, there are no cures for individuals battling EB, however, EB Research Partnership (EBRP) is dedicated to changing that.
Win an Eddie Vedder Signed Guitar and Show Poster from his Seattle Benefit Show (10-24-23)
SUPPORTING
Vitalogy Foundation
Win an Eddie Vedder Signed Ukulele and Show Poster from his Seattle Benefit Show (10-23-23)
SUPPORTING
Vitalogy Foundation
Win a Trip to Catch Eddie Vedder at his Intimate Seattle Shows
SUPPORTING
Vitalogy Foundation